Eli, who was born in 2004, has Fanconi anemia. Fanconi anemia (FA) is a rare, inherited cancer-prone disease that often leads to leukemia, bone marrow failure, and physical abnormalities. Eli has already gone through a bone marrow transplant to restore his immune system, and he has had several surgeries to improve functionality of his hands. He has check-ups every year to ensure he remains healthy and cancer-free.
But Eli is more than his diagnosis. He’s a teen ager. A drummer. A runner. A horseback rider. He has an amazing sense of humor, he loves cats, and has a ton of friends. He enjoys sour patch kids, Dr. Pepper, and expensive sneakers. He’s a normal kid, and he’s an exceptional kid. And our goal is to keep him as healthy as we can, and to help others with FA too.