The Cure for Fanconi Anemia is in Our HandsREGISTER NOW
Hilton, NY just outside Rochester: The well-marked 5K for FA course is set on a beautifully maintained cross country trail, winding through both open and wooded areas of the Parma Town Park in Hilton, NY. It's moderately challenging with a few hills. The 5K for FA raises money for the Fanconi Anemia Research Fund in honor of Eli Lana, Hilton, who was born with the disease in 2004. He continues to amaze us every day, and we hope that by raising money for continued research he will have a long, healthy life.
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Fanconi anemia is an inherited disease that can lead to bone marrow failure and cancer. Though considered primarily a blood disease, FA may affect all systems of the body. It is a complex and chronic disorder that is psychologically demanding. FA is also a cancer-prone disease, affecting patients decades earlier than the general population.
The event itself is inspiring and highly successful, though the course can be a bit of a challenge with its handful of hills. The run starts off in a flat, open grassy area, and then heads into the woods on a looping trail. Race marshals guide your way, and a water station is set up out there. It's a nice, wide trail that's well maintained.
Eli is in excellent health. We live a healthy lifestyle which includes good eating habits, exercise, and frequent check ups. Because of the high risk of cancer, we watch closely for any changes to the inside of his mouth. This is where cancer in FA patients often starts. But he's happy, healthy, and full of energy. As you'll see on May 6.